Ok I really need to get better at posting, I’m kind of slacking and I’m sure you are all wondering how it’s going. I’m going to keep you in suspense for just a bit. Let me start by telling you why I posts there are a few reasons. When Kelli was first admitted I told her I wanted a way to let everyone know how she was doing, as we learned this was going to be a long process. Those who know me know I don’t or ever will do facebook, so that was out. Then my sister in law Brooke set up this blog for us to share the experience. At first I thought this was great, Kelli could write her thoughts down, and have something to keep her busy. Wrong. This was going to be for me to write on. Again those who know me know I’m not a great communicator, I can hardly find enough words to entertain Kelli, let alone write a blog. Trust me I was just as surprised as the rest of you that I could actually communicate by writing, and while I need to be better at posting I really do enjoy writing on the blog. Probably the most important reason for me writing came to me after I had already been putting Kelli’s journey down in words for quite some time. I didn’t realize it at first, but what a great way for her children to read about their mothers experience, and to have to share with their families someday. I hope as they read this the truly realize just how tough and special their mother is, and how hard she fights everyday.
Now it has been pretty busy since the transplant. As you read the transplant itself went very smooth, and still as far as that goes there are no issues. Kelli as expected did develop mucocitus, which is a big word,that I probably spelled wrong, for mouth and throat sores. This was very miserable for Kelli and eventually it got to the point to ear she could no longer eat. The pain was so bad that the doctors put her on a pain pump so she could better manage her own pain. She also had to go on a I.V. diet. This stuff looks like a vanilla shake, but I doubt it tastes like one. Kelli has been on that for about a week and a half, and finally I think her mouth sores are going away.
Things were looking real good until Saturday when Kelli developed a fever. We knew at some point she would get an infection so we kind of expected this as well. The doctors and nurses began to treat the fever with antibiotics and Tylenol, however, this thing would not go away. It would occasionally break, but within an hour or two would be right back. Saturday night they took blood cultures from each of her three ports to see what they were dealing with. The initial results showed an infection in her blood, and another in her port. Saturday night was rough for Kelli but with the help of an outstanding nurse, and charge nurse they were able to keep the fever low and Kelli somewhat comfortable. Sunday was a horrible day for Kelli, I had been up for over thirty hours watching her and had to go home to sleep. Kelli’s dad, and sister Jolie volunteered to stay with her during the day and through the night. Let me stop here and thank them both again. When I arrived back at the hospital Monday morning Jolie informed me Kelli had a rough night, and at one point her fever reached 105.8, no that’s not a typo.
Kelli was in no better shape Monday, but again a great team of nurses was able to get her fever to break, and Kelli felt good enough for a walk. We thought we had the fever beet Monday afternoon. Again I was wrong I left briefly for dinner and when I came back Kelli was in bed shivering uncontrollably, the fever was back. Kelli had another rough night Monday night and today the doctors asked the infectious disease doctors to take a look at Kelli. We won’t have definite answers until probably tomorrow, but it sounds like Kelli’s port may have to come out as this is where the infection is starting. They have amazing people here at LDS hospital and we have no doubt they will get to the bottom of it. So I will keep you all posted with what we find out.